News

Calgary boy battling rare disease brings in big money for Alberta Children’s Hospital fundraiser

When Bode Fox decided he wanted to raise money for the Children’s Hospital of Alberta (ACH), he turned to his mother Susanne for help.

blank

“I talked to him and we said, ‘What goals should we set? ,” said Susanne Fox, a former communications officer for Global News. “’Do you think $500?’ And he said, ‘I think that sounds great, Mom.’

In hindsight, it was a rather modest goal and took almost no time to achieve.

Read more:

New technology key to freeing children ‘locked’ in their bodies

“Within 24 hours, it’s like poppin!” said Susanne, who has reached out to family and friends to support Bode’s participation in the 19th Annual Country 105 Childcare radio support the Alberta Children’s Hospital Foundation (ACHF).

The story continues below the ad

With just a few hours left in the event, Bode had amassed over $33,000 or more than 6500% of his original goal.

“It makes me feel really good because they (the sponsors) haven’t even – they haven’t even heard of me,” Bode said. “That they take the time of the day and donate a few $100 makes a lot of sense.”


Click to play video:'2022 Country 105 Caring For Kids Radiothon raises $2.25 million for Alberta Children's Hospital'







2022 Country 105 Children’s Care Radiothon raises $2.25 million for Alberta Children’s Hospital


2022 Country 105 Children’s Care Radiothon raises $2.25 million for Alberta Children’s Hospital

“I couldn’t even believe what he was able to do,” said ACHF President and CEO Saifa Koonar. “He’s inspired those around him to give and this boy has done it and we couldn’t be more grateful.”

Bode has her own reasons for fighting to help the more than 100,000 sick and injured children who visit ACH each year.

Since last May, the 10-year-old has been battling a rare blood condition called aplastic anemia, a condition that makes him prone to uncontrolled bleeding and highly susceptible to infections.

The story continues below the ad

Read more:

Calgary grandmother calls on ‘heroes’ to support radio

Susanne explains: “This is a very rare blood disease and despite being very clever, it is bone marrow failure. “So the stem cells in his body are being destroyed and the stem cells are, you know, zero for all of us.

“We don’t know what caused it but we do know that his body is destroying his stem cells as quickly as his body is trying to make them.”

“He was at high risk of bleeding. A small bump will become a large hematoma on his body,” says Susanne. “His mouth was always bleeding. He has virtually no immunity to most things and a little cutting can lead to a high fever and sepsis within hours.”

“It was tough and I definitely learned a lot of things that I didn’t know about the body,” said Bode, who has undergone more than 50 platelet transfusions and nearly 20 blood transfusions in the nine months since his diagnosis. own body.


Click to play video:'New technology key to freeing children' trapped'in the body'







New technology key to freeing children ‘locked’ in their bodies


New technology key to freeing children ‘locked’ in their bodies

There is no cure for aplastic anemia, but there are several different treatments.

The story continues below the ad

Unfortunately for Bode, one of them – immunosuppressive therapy – didn’t work. This was followed by a stem cell transplant that was scheduled for March, but was delayed.

“We are very disappointed because… we are working so hard to keep him safe and there are delays every week,” said Susanne tearfully. “There are risks for him.

“It’s a pain in the ass.”

Read more:

Country 105 Radiothon kicks off with support from Alberta Children’s Hospital Foundation

With the exception of twice-weekly hospital visits for blood transfusions, Bode has been under strict quarantine since May 2021. Pandemic caused by covid-19 made it difficult for even his parents to leave the house for fear of the virus entering the house.

“Having an immunocompromised child is one thing and having a child with the condition right now is another because it affects every aspect of his care,” says Susanne. . “When people complain about being quarantined for 14 days, I say, ‘This kid has been quarantined for nine months.’

Despite the setbacks and daily challenges, Fox said fundraising is a really good and positive distraction for her son.


Click to play video:'Calgary grandmother rallies around radio theater to help bring in better neurosurgery equipment'







Calgary grandma gathers around radio conference to help bring better neurosurgery equipment


Calgary grandma gathers around radio conference to help bring better neurosurgery equipment

“He wakes up every day this week and reads texts, and it really lifts him up,” Fox said. “He got a real hit from it.

The story continues below the ad

“He can’t wait to talk to his doctors and nurses and let them know how much money has been raised for this.”

All funds raised are passed radio station will support ACHF in its efforts to fund research, education and technology at the children’s hospital in Calgary.


Click to play video:'2022 Radiothon Child Care'







2022 Child Care Radiothon


2022 Child Care Radiothon

“In terms of Children’s hospital, this hospital is nothing short of typical. Susanna said. “And it’s because of this community, and fundraisers like this, that make it so. So it wasn’t an accident.

“It’s a community that cares about children and that’s where our children get the best care.”

“I am so grateful for that and I cannot explain how good the nurses and doctors are there. Some of them are the best in the world. And I feel really, really safe there,” Bode added.

© 2022 Global News, a division of Corus Entertainment Inc.

https://globalnews.ca/news/8596789/calgary-boy-big-money-alberta-childrens-hospital-fundraiser/ Calgary boy battling rare disease brings in big money for Alberta Children’s Hospital fundraiser

Russell Falcon

Inter Reviewed is an automatic aggregator of the all world’s media. In each content, the hyperlink to the primary source is specified. All trademarks belong to their rightful owners, all materials to their authors. If you are the owner of the content and do not want us to publish your materials, please contact us by email – admin@interreviewed.com. The content will be deleted within 24 hours.

Related Articles

Back to top button